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Hep-C
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About Siren To Wail
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Music With A Message
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It's always nice to see another website getting information out to people. Please join me at Yahoo groups called HepCDragonFighters.
Colleen Morse
tigerhawksoars
Mounds View, MN
USA
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7/10/2003 8:54:59 AM
hey fellow heppers.i have hep since 1969 (non-a non-b)and i am still here so .hang tough! we can make the long haul. i read that we are all going to die with hcv, but not necesserily from it. peace
Thomas
Tommylilbear
Augugliaro, NY
USA
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5/13/2003 6:22:00 PM
Great Site.....I'm an Artist a Painter,who after becoming disabled about 10 years Now..I turned to the Puter ..I have Many Sites ,plus I have an Avatar Chat Palace...But that's a whole different Ballgame,but a great one...I also know the Musician who did the Music for alot of Kids Shows,like Dora the Explorer and I'm sure Blue that big blue dog ..and a Bunch of other Stuff..,But I'm the Hepper..Not him it may be a good contact One Day, Wow I'm sooo glad I came upon your Site and Hope to make another Online Friend....
Tony aka WIZofWAZ
wazzie
Land of Waz, NY
USA
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4/28/2003 9:55:05 AM
Great Site! First I'd just like to say that "I feel your pain" to all of you with Hep C. I am a 41 SWF diagnosed with Chronic Hep C in 1995 for the first time. I was scared, mad, ashamed, and so uneducated about the disease. I lost my brother a year ago from AIDS so all my energy was focused on his disease and taking care of him for the last 15 years, so I never really thought much about my own disease until now. I am also diabetic, and suffer from "plantar fascitis" which just adds to more problems. I have never had any kind of treatment for this disease as I just kept putting it off for fear of the unknown I guess you could say but have made some choices in my life now & I will be starting my first treatment for Hep C with the PegIntron & Rebetol treatment 04/25/03 and can say I am a little scared but am very strong willed. We must all be strong and stay educated so that we can educate the next generation coming up. I have 2 daughters age 22 & 23 and it is my job to make sure they are educated. Would like to say to all - keep up the faith & keep praying for a cure!
Tommie Simmonds
ltjm8
Irving, TX
USA
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4/24/2003 7:20:12 PM
I have seen you on channel 4 morning news.My anger was where were they when I needed someone,but now I have gotten passed that I am very happy you are here.
Love Elaine
Elaine Thomas
et57-15
New Orleans, La
USA
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4/23/2003 11:33:56 AM
This is a great site!! It is SO good to see encouragement and places where people with HCV can come to find out more information and get support. I'm 18 years old and was diagnosed with HCV in early 1999. I received it via blood transfusions when I had cancer as a baby, and shortly will be starting the pegatron treatment. I wish I could volunteer with all of you, but I'm not in New Orleans...keep up the good work...this is absolutely wonderful!!
Sarah
sarahk_1984
Modesto, CA
USA
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4/5/2003 10:53:31 AM
Great site. We are also using music to raise awareness, and a video documentary of HCV recovery and CD are in production. Keep up the good work, and come check us out! I am recovered now after 28 years with HCV and reaching end stage.
Peace, Jeanine
Jeanine London
hepc
Paonia, CO
USA
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3/23/2003 9:28:43 AM
Hi Timothea!
Site looks great...
love, Pat
Pat Robinson
patagoura
Agoura, CA
USA
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3/4/2003 10:28:50 AM
It's always nice to get more info regarding Hep C.
Colleen Morse
tigerhawksoars
Twin Cities, MN
USA
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3/4/2003 12:07:09 AM
Just found your web site. It looks very good. I intend to attend your next support group meeting.
Thank you for being there.
Nick LaRocca
nlarocca
New Orleans/Morgan City, LA
USA
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2/4/2003 11:54:34 PM
Hello From Worcester! Cool Site
Worcester
nwf
Worcester, MA
USA
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1/30/2003 7:52:37 PM
Hi,
thank you for this site. It's very informative and easy to read.
Nina
Nina
info
Germany
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1/26/2003 10:01:01 AM
hi. i have a very close friend who was recently diagnosed with hep c. Her husband and daughter also tested positive, but now, thankfully, the virus isn't showing up in my friend's blood tests. I am grateful to this site for providing me information while i was terrified for her and fairly ignorant to the disease. I also know Doug Barstow, one of your supporters, from high school, so 'hello' to him if he reads this. Thanks for taking the time to create such an informative site that has helped me better understand this virus.
gretchen v
g_vanderpool72
dallas, tx
USA
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1/20/2003 4:22:05 PM
It's good to know that there is local support. I've just started treatment (Peg) and have many questions. See you at the next support group! THANK YOU.
Tina
tinasurfin
Jefferson, LA
USA
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1/13/2003 11:35:11 AM
I have been to many hepC sites, but never have I experienced one--like yours.!! You are doing what all cities should be--Public Awareness.You have al-
so created what seems to be,a comfort zone for those of us,,who are dealing with those fear factors,self-imposed is-
olation chambers, and uneducated pro-
fessionals who label themselves==doctors
I have lived with this virus for 10+yrs.
It has changed me, for better and for worse.,as it did for my now deceased husband. Continue to grow and spread the word.....Maybe a little to the North?????????????
Peace P'
Pat Bein
pbn711
Racine, Wi
USA
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1/4/2003 7:36:15 AM
I've been diagnosed for ~5 years, now contemplating treatment since peg-interferon is available. I'm afraid of side effects & possible interference in day to day living, esp.since I'm not having any major hep related issues other than lab values-- ALT & AST somewhat elevated, viral load pretty high. I'd like to hear from anyone who has gone thru treatment while basically asymptomatic. I'm leaning toward taking the leap. I'd like to get this resolved. Such a scary leap tho...meanwhile, glad to know this group is right here at home!
Linda
kagesue
New Orleans, La
USA
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1/3/2003 9:07:06 AM
I was diagnosed with hep c when I was 18 yr. old. Now I am 35yr. in August 2002 my hep c became active again. I had been taken fioricet for my migraines for several yrs. Not knowing the damage it was causing. I ended up in the hospital for a wk. with active hep. C for the second time. I had to with drawal from nursing school and rest for a while, till I could returned to school.I tell you the past 2 1/2 months have been hard on me trying to finish nursing school. But I am in pain alot but I have to keep going. My doctor want give me any pain med, which is fine. I just want to know is there any thing I can do to relieve this pain. I wish someone would of told me that acetaminophen causes damage to your liver, specially if you have had any kind of hepatic problems in the past. I wish the best to all of you and may the sun shine on you endlessly. God Bless
Julie Thomas
Rockyrocklvn
Lytle, Tx
USA
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12/28/2002 9:26:18 AM
I was encouraged to find this site after being told I have active Hep C now. Maybe I can find a support group to help me deal with it. Dr. Perillo is one of my doctors.
Dorothy
dldfaulkner
Baton Rouge, LA
USA
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12/27/2002 10:03:04 AM
Linda Hopkins ? I hadn't heard of her before visiting this web site. Having been a presenter of blues (and related rhythms) radio program for 14 years I'm gonna' hunt down some material by Linda Hopkins for my audience. All the best for 2003
Glenn Nelson
glenn
Melbourne
Australia
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12/23/2002 5:08:20 PM
I had the immense pleasure of hearing Ms. Linda Hopkins perform at Ms. Dahle Scott-McDuff's monthly Pavior's Night @ Miceli's in Hollywood on 11-25-02. Thank you Linda for sharing your special talents! If anyone would like to see a photo please email me direcly.
Joi
Joi Dickerson
joidickerson
Los Angeles, CA
USA
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12/16/2002 4:45:22 PM
Hi Yall I am Glen , I have had hep since 72. I was diagnosed with non A non B . I thought that I was over it when 30 years later I found I had it again this time in the hcv form . I have been on peg intron combo for 9 mos now and have been blessed to be clear after only 9 weeks. If I can help out this wonderful website let me know . Happy to see you doing somthing for us :) . Glen (GAZZER)
Glen Bersch
glenbersch750
M eitairie, La
USA
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12/14/2002 10:37:34 PM
I havebeen co-infected since formal hiv diagnosis in 1989. I feel quite sure I was infected many years before. I was elated to hear something was/ has been done to bring public awareness/assistance locally to this silent epidemic. i`m not able to domuch either physically & especially financially, but I would be happy to assist any way I can, Thanks, chuck west
charles(chuck) west
chuckw4
new orleans, la
USA
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11/20/2002 9:26:57 AM
The idea of music with healing is also my cup of tea.Please for nexts years siren to wail Hepatitis C Awareness i would love to be apart of the music with a message.
Gregory Dawson
Crosswinds Band
Gregory Dawson
Sdgreg
New Orleans, La
USA
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11/20/2002 8:01:20 AM
I think it's great what you all are doing . we need to get a cure soon or I hope so . we need to get the word out . I have hep. c myself and hope a cure comes soon!
milton gautreaux
mgautr8005
new orleans, la
USA
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11/19/2002 4:07:05 PM
Dear friends, Thank you for your work. I've been diagnosed with Hep C for the last six years. I am a non-responder. I believe this fight needs a "true" spokesperson for the disease, not another P.Anderson or N.Judd who will downplay the seriouness of the situation.We need ZZTop,Phil Lesh,and Freddy Fender to speak to their millions of followers about the true dangers of HepC. God Bless, Ted Robinson
Theodore B. Robinson
TheodoreRobox
Weaverville, NC
USA
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11/17/2002 5:31:19 PM
Enjoyed the site and it is good to see more information on Hep C. I wish for a cure and hope for everyone. LaDonna
LaDonna Allard
Ladonnabrave1
Fort Yates, ND
USA
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11/9/2002 9:59:57 AM
Charlene B. Durham
cdsister
New York, NY
United States
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9/15/2002 8:48:02 PM
Would like to meet others with HCV, for
support and friendship. I am a single
WSM 41 yo, very active.
Walter S. Smith
moondoggie747
New Orleans, La
USA
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8/28/2002 3:44:25 PM
Timothea and Dr. Perillo,
Thanks for your efforts increasing awareness of HCV. I was diagnosed a year ago and only recently discovered "Siren to Wail". It is a tremendous resource I will share with others. Thank you.
Liz
epcropp
New Orleans, LA
USA
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7/18/2002 2:15:06 PM
thank you for all of your work, we do apreciate it very much. Alot of us are becoming active and might need some advice.
brad scalf
bscalf
phoenix, az
USA
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7/10/2002 4:16:48 PM
People healed of AIDS,MS,Cancer,Parkinson's Disease, Hepatitis C at:
Baltimore Christian Faith Center
10308 Liberty Road
Randallstown, Md 21133
dave
USA
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7/5/2002 4:14:38 PM
Lee F. Dorsey
Ldbld
Ontario, ca
USA
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5/31/2002 6:41:27 PM
i have chronic active hep c. cirrohsis has just started. also just found out i have sarcoidosis i pray for a transplant. i also suffer from severe ruq pain and abdominal pain
teresa morancie
tmorancie
bangor, me
USA
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5/24/2002 6:29:56 AM
People healed of Hepatitis C at:
Baltimore Christian Faith Center
10308 Liberty Road
Randallstown, Md 21133
dave
USA
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5/21/2002 7:51:22 AM
PLease continue to help fight this virus. currently on 5th. month of 12month peg-intron combo
Cathey S
savanmarley
Mandeville, La
USA
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5/17/2002 2:00:16 PM
Nice hepsite! The idea of music with healing is my cup of tea & even though our music types may be different, the idea is the same.
Health Hugs!
Karen
Karen
hepatitisc
Tyler, Tx
USA
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5/8/2002 8:34:55 PM
Had a wonderful time Friday night & bowling on Sunday. Thanks for all the work that you do in HCV education. Please put me on the mailing list
Elizabeth "Bizza" Britton
ebritt
Baton Rouge, LA
USA
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4/8/2002 11:14:44 AM
Elizabeth "Bizza" Britton
Bat
USA
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4/8/2002 11:11:05 AM
THANKS TIMOTHEA FOR TAKING THE HUGE STEPS THAT YOU ARE TAKING TO MAKE HEP C THE MAJOR HEALTH PROBLEM ISSUE THAT IT IS.
Charette Thomas
WWW.CTHOMAS3710
New Orleans, LA
USA
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4/8/2002 10:15:23 AM
Very Informative!
Gsle
gloria27
Bethune Beach, FL
USA
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1/26/2002 11:28:53 AM
Jodie
taumur
Metairie, LA
USA
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1/12/2002 9:20:44 AM
Timothea: Thanks for your help in our Hepatitis C benefit concert on Jan. 6th. at the Tractor in Seattle. I know that Ane and everyone greatly appreciated it and it was a pleasure playing with you. I hope that we can play together again in the future. Take care and keep on getting the information out about hep C. We've lost too many already and need to get everyone possible aware of this disease.
John Hodgkin
johnhodgkin
Seattle, WA
USA
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1/9/2002 1:04:23 PM
http://www.gkmedical.com/index.shtml has good information relating to Liver Health.
Tim S.
roadracer7
orlando, FL
USA
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12/26/2001 2:22:11 PM
Timothea, thank you for your dedication to Hepatitis C. The benefit was rocking and I can't wait to see what you are going to whip up for next year. To all those hesitant about treatment - Don't wait, it can change your life. I heard so many negative things about the side effects, but I am 4 weeks in and have had almost none. A positive attitude is a must. Good luck and love to all.
Robin
sunysidefl
New Orleans, LA
USA
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12/10/2001 4:44:40 PM
I had a great time at the benefit and
I can't wait for next year.
I want to thank Thimothea for her tireless
efforts on the benefit and all the work
she has done for the orgainization.
Hope springs eternally in her human spirit.
catman......ISYA
Chet catman Travirca
catmanlll
Gautier, ms
USA
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12/6/2001 2:52:38 PM
how do we get rid of this disease without using interferon?...to good health! Kenneth
Kenneth Harper
twangster_1999
Vacaville, CA
USA
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9/27/2001 11:18:00 PM
Your campaign to raise awareness of Hep. C is working. Thanks. je
Jerry
jerryembree
Metiaire, LA
USA
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9/7/2001 4:14:00 PM
I don't think I've ever felt compelled to sign a guest book before. But it has been a pleasure being your guest. This damned condition has been a fight to acknowledge. I too am a writer and until my marriage (one year old, my HepC is a decade on) I felt no complusion to address it. Alone, it stayed with me, and being a sucker for punishment, accepted it as such. But with a loving man now by my side, I am forced to address it. Thankyou for your web site, thankyou for allowing me to be your guest, Yours sincerely, Helenka
Helenka
hwargon
London
United Kingdom
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9/2/2001 6:59:00 AM
Thank you for giving me information that not even the doctor could. I was diagnosed last week and not one question was answered for me. I was told that there was nothing else he could do for me now... I'm very scared... thank you for the information that I was looking for and the knowledge I can use to fight this... I do appreciate it and God bless!
Debbie
Darlin759
Pa
USA
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4/17/2001 11:19:00 PM
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Siren To Wail,
Inc.
is dedicated
to raising public awareness, education and prevention of
the Hepatitis C Virus
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