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Music With A Message
Hello to all!
I am 46 years young and newly diagnosed.
My genotype is 1b and my viral load is 3,110,000. My biopsy shows grade 2 portal fibrosis. I will be starting treatment very soon...just waiting to hear from insurance for approval. I found out I have HCV from some bloodwork drawn for a life insurance med exam. I have had symptoms for 2 years...just didn't know what was wrong. I've been treated for everything BUT Hep C (i.e. IBS, colitis, ulcers, anxiety, depression). I think my doctors thought I was a hypocondriac! I take great comfort knowing there is so much good information and support available to me via the internet. Would love to correspond with others facing this "journey". I'd be lying if I didn't say I was scared. It helps knowing I am not alone.
Karen
Slidell, LA
USA
-
11/21/2004 8:40:25 AM
I really think this a really nice site! If there is anything I can do to help make this site better just send me a email. I'd be more than happy to volunteer. I wish you much sucesss in your efforts to get the word out on HCV.
Glenn
Charleston, sc
USA
-
11/18/2004 3:09:02 PM
Needing some help. My husband has been on the treatment for 6 months. Right now his white blood cells are down real low. He is having a real hard time. We are looking for a Hepatoligist now. We are not happy with the dr we have now. Luckily my husband has not missed any work yet but that is starting to look real slim. He has blisters on his hands and we are told that has to do with his liver. He only sees his dr every 3 months. That will be only 4 times in a year while he is on treatment. Help.
Thanks,
J.Posey
Hammond, LA
Judy Posey
Hammond, LA
USA
-
8/27/2004 11:30:09 AM
Hi I just wanted to say sorry for all those lost ones to Hep C! I just started my treadment 3wks ago Good luck to all you brave people. I didn`t know that I had Hep C until 17 yrs later I think I came in contact with it. I`m type 2 with advancements and another 43 wks to go!!!I`m a 35yr white male.
rnl
toronto, on
canada
-
7/17/2004 11:22:41 PM
We just moved back to NM after living in New Orleans for awhile, I'm sorry we will miss the "Once in A Blue Moon" benefit this year. My dad died 5 years ago from Hep C complications, he was an amazing blues musician (he contracted Hep C by sharing dirty needles), anyhting I can do to keep someone else's dad from dying from the disease I will. Beauitful site, beautiful cause......
Christy Sexton
Las Cruces, NM
USA
-
7/14/2004 1:01:11 PM
Dearest Timothea:
I just took a look at your site (after seeing your post on the Hep C Hope Forum). It is a pleasure and a privilege to have you as a Pro-Active for the Hep C Awareness Movement.
I was sitting with Jesse B. the other day when he received your Fedex with the "Siren to Wail" brochures. This is a guy whom I am truly proud of. Carrying the message of Hep C education into the schools is part of Life's educational process- and Jesse is doing just that (as are you both with your music).
God is Good- ALL the Time, Timothea.
My Love, Joel
Joel
Greater Metropolitan Area, NY
USA
-
6/13/2004 4:48:00 PM
My Dad was diagnosed on March 25,2004. He died March 26,2004!! He recieved a blood tranfusion in 1996 when he fell and broke his hip. I had never heard of Hep c until the year 1998 when my twins were born early and they were tested. My Dad never shared needles,he never went out on mom none of the usual suspects for gerring Hep c. I am still in major shock about this happening. I had my children tested,I was tested all negative. I wish I had known to make his doctors test him for this, I know now for my children because of blood they recieved. I am so Thankful for your sight. I know people can live with this and still function. May God Bless all of you and don't forget how Lucky you are to still be here so never give up the FIGHT!
Petra Franzen
Bristow, OK
USA
-
5/27/2004 1:37:23 AM
Greetings from Louisiana Well, for weeks left of the 48 weeks of tx. Its been a long road. I was diagnosed undetecable at week 12. Now I am getting a little nervous about my last labs that will be coming up soon. Guess this is normal. Good luck to everybody, and peace be with you.
DClampi formally ROOK09
David
Metairie, La
USA
-
5/11/2004 2:28:08 AM
I have just been diagnosed with hep c. The doctors don't know how long I've had it or how I got it. I'm 31 years old. I've read alot of these articles and to be honest I'm kinda scared to go get the treatments. By the sounds of most of these testimonies,Does the treatment ever work!!! It sounds like you go through alot of Hell for no reason most of the time. If anyone out there has had any positive results please contact me, right now I'm kinda of undecided what to do.
LORIE
ERWIN, NC
USA
-
4/27/2004 10:43:01 AM
My sister is suffering, the serious side effects of the pegatron treatment, she has discontinued treatment, yet still has problems.How long will this continue? any info would be greatly appreciated. Thanks Greg
greg k
trenton, on
canada
-
4/25/2004 12:48:32 PM
My name is Meeshell, I have had hep C now for 18 years. I feel that no one cares about my Illness, Its very misunderstood! I have been very ill and can't do treatmeant! I wish there was someone to help me... I can't fight this dragon alone! I am only 36 years old, I have a husband and two wonderful daughters. I AM NOT a drug user and got Hep C from a tatoo I recieved in the early 80's! Im not ready to leave this earth yet, although I do know where I am going(I have Faith In the Lord) I want to see my Grandchildern born someday!!!! I need help......
God Bless and Much Love,
Meeshell Love
Highland, CA
Meeshell Love
Highalnd, CA
USA
-
3/22/2004 1:05:57 PM
am in the 4th month of pegatron
jennifer collver
saltspring island,, bc
canada
-
3/6/2004 9:02:01 PM
been advised to contact you,(research) i like your work.
norvan black moon
salem, or
USA
-
2/23/2004 3:38:32 PM
I just want to thank everyone for signing my guest book. I wish to God I could find a mircle for us all. WE can't give up faith and we have to pave the paths for kids of the future and that's the only way to stop the spread . We have to make people aware. If we keep it to ourself we are not helping anyone. The only thing we can spread without blood and with Hep C is Awareness that you can only way you get it THROUGH BLOOD. None of us has anything to be ashamed of. God Bless You All !
Timothea
Timothea
New Orleans, La
USA
-
2/10/2004 10:09:37 PM
Hep C from a blood tranfusion in 1980!.Tried Peg-Intron and Ribrivin. Tired ALL the time...but the worst thing is a extremely low platelet count of 29-31. I tested positive for a D-dimer test for a blood clot. I also developed Diabetes from the steroids of the Hep C treatment. I also developed high blood pressure and the usual gi complaints. Sad part is, I am a nurse and usually not able to work. Doctors are not very helpful. Mine told me with her back turned towards me, that I have cirohosis. All this WITHOUT a BX of the liver BEFORE treatment. NOW I'm told I can't have a BX because of the extremely low platelet count! They stopped the treatment early because of this count. Now I suffer extreme exhaustion etc. Much worse before I began the treatment. My husband is now unemployed and I continue to try to work to keep us going, but it's difficult mentally. I asked about disability, and this doesn't seem to be an option because of my age (53). So I try hard to keep my spirits up and keep in mind that others are doing much worse than me. So, Good Luck to all of you fellow heppers out there and know that you are thought of daily and god bless.
Maureen
Paso Robles, CA
USA
-
1/25/2004 9:44:36 PM
I CONTRACTED HEP C WHEN I HAD MY SON 31 YRS AGO, UNDERSTAND I DO NOT BLAME MY SON, HE IS MY LIFE, BUT I DID GO THRU THE INTERFERON FROM HELL TREATMENT, MY LEVELS OF HEP C WENT RIGHT BACK UP AFTER GOING THRU THE TREATMENT FOR 10 MONTHS, ALTHOU MY BODY HURTS AND I SOMETIMES FEEL LIKE A RAG DOLL, I COULD NOT GET DISABILITY, BUT THERE ARE PEOPLE OUTR THERE WHO CAN WORK AND ARE APPROVED. WHAT IS THIS WORLD COMMING TOO ?
Irene
Galway, NY
USA
-
1/24/2004 4:49:42 PM
Good site,have had hep C for 4 years.My best freind and lover,my wife died on christmas eve morning of 2002,I held her hand as her last breath ebbed and cried for the loss of one of the good ones.so tired and so sad:(Will the pain of a broken heart ever go away.?How do you till a sweet little dog her momma wont be back.?
Mel Burss "Merlin"
Greensboro , NC
USA
-
12/8/2003 12:12:00 AM
as a recovering addict and a blueslovver-i somehow managed to escape hep c and all the other life taking diseases and afflictions that come with the dargons' wrath. this is a beautiful organization. keep on keepin on-wish i could donate-but am onssdi and bankrupt.
wy thoughts and prayers are with alll my brothers and sisters whoa re fighting for their lives on our strets and in their homes today. may peace find you. be strong. stay clean, and keep your head held high. you are worthy of a life of happiness and dignity.love ya blooze 56 boston ma 11/14/03
blooze56 /susan
medford , ma
USA
-
11/14/2003 8:55:59 AM
I was diagnosed in 1997 with "Non A-Non B" hepatitis, only because they didn't have an official Hep C designation then. My doctor, who was recently rated the #2 Hep doctor in Michigan immeadiately put me on Interferon for a year. I felt so bad after less than ten days that it became a struggle to dose myself every other day. As expected by him, my numbers came down quickly, held steady for a while, and eventually went back up to their previous level. After 90 days he took me off of all meds because they weren't helping my case. I had Hep B & C, developed necrosis and chirhosis, and none of it was unexpected.
It's now almost 7 years later and I feel fine. I still get my blood workups every 90 days and my enzyme levels are actually a bit lower than when I was diagnosed.
I suppose my point is to remind people to get more than one opinion, that even the doctors don't know how this disease will progress. I have several friends who should've been dead by now if they listened to their doctor's assessment. I've also lost some friends very quickly, a year or less after diagnosis. Much depends on how you treat yourself. NO alcohol! NO dope! Get the proper amount of sleep and rest every day. Force yourself to eat properly. NO smoking! Drink lots of water to help your kidneys. They're working overtime filtering out some toxins your liver normally would.
Finally, if you're having trouble handling your meds (lots of us do), don't quit them. Your doctor may lower your dose or give you an anti anxiety drug for some peace of mind.
This is a disease someone can live with for several decades or more and have a high quality of life. I wish you all well and am very happy I found this site. Thanks for the forum.
Rob
Green, Mi
USA
-
11/6/2003 9:35:34 PM
My doctor "does not put hep c patients on disability. He took me off the meds after 19 weeks of the 24 wk treatment because "I was a danger to myself and others" yet he would not take me out of work. I had a problem with the meds making me not know if I was coming or going. I chose my doctor because he was in the same town and was told he was a good doctor. He never saw me once the whole time I was on the treatment.Please make sure you find out everything you can about your doctor before you choose him. I had a job with a company for 15 years with disability insurance in case I couldn't work.I was told I didn't have hep-c any more by the nurse. I quit my job because I couldn't sit at my desk and hold a thought for any length of time. I figured after the meds wore out of my system I would be better and would return to work. Before my head cleared I had my rash and feet and legs swelling up again along with fatigue. The nurse at my doctors office would tell me nothing was wrong with me. I still have the hep-c . My count went from 3 mil before treatment to 15 mil after treatment. If you live in New Iberia La. PLEASE go out of town to be treated. Seeking treatment close to home is not allways your best bet. I now have the hep worse than it ever was,but now I have no job, no money or the energy to go back to work if my legs and feet worked. Thanks for letting me vent. Again check out your doctor before you let him treat you. Sybil Blackburn ,New Iberia, La.
Sybil Blackburn
New Iberia , la
USA
-
11/4/2003 12:52:07 PM
I'VE BEEN 0DIAGNOSED WITH CIRRHOSIS AND BEEN TRYING TO HOLD MYSELF TOGETHER. THE PEG-INTRON TREATMENT DIDN'T WORK FOR ME, SO RIGHT NOW THE DOCTORS CAN ONLY GIVE ME WATER PILLS BUT IT'S NOT REALLY HELPING ME BRING DOWN THE SWOLLEN OF MY FEET AND STOMACH, CAN SOMEONE RECOMMEND A BETTER TREATMENT FOR SUCH PROBLEMS? I also need info on any type of support groups here in NY city. thank you and good luck to all
Jose
Rivera, NY
USA
-
10/30/2003 2:25:55 PM
Heard Timothea at the Pretzel City Salt Jam in Reading, PA June 2003, AWESOME!!!
Would LOVE to hear Buddy Guy & Dr. John...hope we can do this in PA one day soon! Keep the great work, the webiste is SUPER!
Deb Graner
Mertztown, PA
USA
-
10/23/2003 4:18:45 PM
I was diagnosed with Hep-C over fifteen years ago, but was infected over thirty years ago during a transfusion. About ten years ago I was seen by a Hepatologist until she moved back to New York. I'm being seen by an Internist now who manages all of my medical problems. Anyone out there know of a good Hepatologist? Good Luck to all of us! And thank you for this site.
Linda
LCVelcich
Linda Velcich
New Orleans, LA
USA
-
10/15/2003 11:15:25 AM
I found out I had Hep C in 1994 by a doctor walking in the exam room and telling me I had the virus and I would be dead in 5 years. Great way to found out! After going to about 5 other doctors I finally found the right one. I tried Interferon 2 times but each time I quit after one month because of the pain. Finally we tried Rebetron. I had the treatment for a year. My final blood test show the virus was nondetectable. That was three years ago but alas the virus is back. Now with no insurance I truly feel my days are numbered. At least I had 3 pain free years. Wish me luck.
Debbie
La Place, La
USA
-
9/19/2003 8:14:06 AM
My wife was falsly diagnosed with Hep C and lost over 45 pounds and went from a dress size 22 to a dress size 10... Learn more: www.dietnowdirect.com
Erik
Charlottesville, VA
USA
-
9/16/2003 8:57:44 PM
just finished peg-intron, I cheated a little hope it still worked it was he worst year..I was very sick had children at home and bills to pay. I suggest to anyone who is starting or thinging of this therpy to have losts of support and make arrangments so that you don't have to work..cuz you need lots of rest and lots of love during treatment. Wish me luck and thanks for this site....42 year old mother of 4 with hepC.
terry
ny
USA
-
9/14/2003 2:46:32 PM
Excellent site and job you are doing to further HCV Awareness.
I am from the New Orleans area.
HCV genotype 1a and 2 years post liver transplant.
I was fortunate enough to have been given a second chance at life through the miracle of life saving liver transplant surgery.
Unfortunately because of the dire shortage of organ donors and the increasing need for liver transplant surgery from HCV ESLD many Hepatitis C patients will die waiting for life sustaining transplant surgery.
Please become an organ donor and make your last act your most unselfish, gracious and loving one of all to your fellow man.
Please view my web page dedicated to Organ Donation Awareness and my own nephew Patrick M. Lynch, Jr. He was only 18 years old when he was tragically killed in auto accident.
He was a very wise and unselfish young man when at the young age of 16 he decided to become an organ donor when he received his first drivers license.
Please become an organ donor and contribute to:
"Patrick's Plan Donate Life"
http://hometown.aol.com/posttransplant/index.html
Thank You and God Bless.
Deborah A. Lynch
Deborah A. Lynch
New Orleans, LA
USA
-
8/31/2003 10:12:42 PM
Hi, Great site, just found it through a link on our support bulletin board.
Keep up the good work,
Vikki Shaw
http://hepcvets.com
(Former founder and owner of Hepatitis Central)
Vikki Shaw
USA
-
8/15/2003 6:41:17 AM
I run a support group in Jacksonville, North Carolina since 1999. If you know anyone who is looking help from Eastern North Carolina. Please give them my email to them.
Also, please keep us up to date on up coming events or help you may need.
Susan Chapter
Jacksonville, NC
USA
-
7/20/2003 12:24:49 AM
It's always nice to see another website getting information out to people. Please join me at Yahoo groups called HepCDragonFighters.
Colleen Morse
Mounds View, MN
USA
-
7/10/2003 8:54:59 AM
hey fellow heppers.i have hep since 1969 (non-a non-b)and i am still here so .hang tough! we can make the long haul. i read that we are all going to die with hcv, but not necesserily from it. peace
Thomas
Augugliaro, NY
USA
-
5/13/2003 6:22:00 PM
Great Site.....I'm an Artist a Painter,who after becoming disabled about 10 years Now..I turned to the Puter ..I have Many Sites ,plus I have an Avatar Chat Palace...But that's a whole different Ballgame,but a great one...I also know the Musician who did the Music for alot of Kids Shows,like Dora the Explorer and I'm sure Blue that big blue dog ..and a Bunch of other Stuff..,But I'm the Hepper..Not him it may be a good contact One Day, Wow I'm sooo glad I came upon your Site and Hope to make another Online Friend....
Tony aka WIZofWAZ
Land of Waz, NY
USA
-
4/28/2003 9:55:05 AM
Great Site! First I'd just like to say that "I feel your pain" to all of you with Hep C. I am a 41 SWF diagnosed with Chronic Hep C in 1995 for the first time. I was scared, mad, ashamed, and so uneducated about the disease. I lost my brother a year ago from AIDS so all my energy was focused on his disease and taking care of him for the last 15 years, so I never really thought much about my own disease until now. I am also diabetic, and suffer from "plantar fascitis" which just adds to more problems. I have never had any kind of treatment for this disease as I just kept putting it off for fear of the unknown I guess you could say but have made some choices in my life now & I will be starting my first treatment for Hep C with the PegIntron & Rebetol treatment 04/25/03 and can say I am a little scared but am very strong willed. We must all be strong and stay educated so that we can educate the next generation coming up. I have 2 daughters age 22 & 23 and it is my job to make sure they are educated. Would like to say to all - keep up the faith & keep praying for a cure!
Tommie Simmonds
Irving, TX
USA
-
4/24/2003 7:20:12 PM
I have seen you on channel 4 morning news.My anger was where were they when I needed someone,but now I have gotten passed that I am very happy you are here.
Love Elaine
Elaine Thomas
New Orleans, La
USA
-
4/23/2003 11:33:56 AM
This is a great site!! It is SO good to see encouragement and places where people with HCV can come to find out more information and get support. I'm 18 years old and was diagnosed with HCV in early 1999. I received it via blood transfusions when I had cancer as a baby, and shortly will be starting the pegatron treatment. I wish I could volunteer with all of you, but I'm not in New Orleans...keep up the good work...this is absolutely wonderful!!
Sarah
Modesto, CA
USA
-
4/5/2003 10:53:31 AM
Great site. We are also using music to raise awareness, and a video documentary of HCV recovery and CD are in production. Keep up the good work, and come check us out! I am recovered now after 28 years with HCV and reaching end stage.
Peace, Jeanine
Jeanine London
Paonia, CO
USA
-
3/23/2003 9:28:43 AM
Hi Timothea!
Site looks great...
love, Pat
Pat Robinson
Agoura, CA
USA
-
3/4/2003 10:28:50 AM
It's always nice to get more info regarding Hep C.
Colleen Morse
Twin Cities, MN
USA
-
3/4/2003 12:07:09 AM
Just found your web site. It looks very good. I intend to attend your next support group meeting.
Thank you for being there.
Nick LaRocca
New Orleans/Morgan City, LA
USA
-
2/4/2003 11:54:34 PM
Hello From Worcester! Cool Site
Worcester
Worcester, MA
USA
-
1/30/2003 7:52:37 PM
Hi,
thank you for this site. It's very informative and easy to read.
Nina
Nina
Germany
-
1/26/2003 10:01:01 AM
hi. i have a very close friend who was recently diagnosed with hep c. Her husband and daughter also tested positive, but now, thankfully, the virus isn't showing up in my friend's blood tests. I am grateful to this site for providing me information while i was terrified for her and fairly ignorant to the disease. I also know Doug Barstow, one of your supporters, from high school, so 'hello' to him if he reads this. Thanks for taking the time to create such an informative site that has helped me better understand this virus.
gretchen v
dallas, tx
USA
-
1/20/2003 4:22:05 PM
It's good to know that there is local support. I've just started treatment (Peg) and have many questions. See you at the next support group! THANK YOU.
Tina
Jefferson, LA
USA
-
1/13/2003 11:35:11 AM
I have been to many hepC sites, but never have I experienced one--like yours.!! You are doing what all cities should be--Public Awareness.You have al-
so created what seems to be,a comfort zone for those of us,,who are dealing with those fear factors,self-imposed is-
olation chambers, and uneducated pro-
fessionals who label themselves==doctors
I have lived with this virus for 10+yrs.
It has changed me, for better and for worse.,as it did for my now deceased husband. Continue to grow and spread the word.....Maybe a little to the North?????????????
Peace P'
Pat Bein
Racine, Wi
USA
-
1/4/2003 7:36:15 AM
I've been diagnosed for ~5 years, now contemplating treatment since peg-interferon is available. I'm afraid of side effects & possible interference in day to day living, esp.since I'm not having any major hep related issues other than lab values-- ALT & AST somewhat elevated, viral load pretty high. I'd like to hear from anyone who has gone thru treatment while basically asymptomatic. I'm leaning toward taking the leap. I'd like to get this resolved. Such a scary leap tho...meanwhile, glad to know this group is right here at home!
Linda
New Orleans, La
USA
-
1/3/2003 9:07:06 AM
I was diagnosed with hep c when I was 18 yr. old. Now I am 35yr. in August 2002 my hep c became active again. I had been taken fioricet for my migraines for several yrs. Not knowing the damage it was causing. I ended up in the hospital for a wk. with active hep. C for the second time. I had to with drawal from nursing school and rest for a while, till I could returned to school.I tell you the past 2 1/2 months have been hard on me trying to finish nursing school. But I am in pain alot but I have to keep going. My doctor want give me any pain med, which is fine. I just want to know is there any thing I can do to relieve this pain. I wish someone would of told me that acetaminophen causes damage to your liver, specially if you have had any kind of hepatic problems in the past. I wish the best to all of you and may the sun shine on you endlessly. God Bless
Julie Thomas
Lytle, Tx
USA
-
12/28/2002 9:26:18 AM
I was encouraged to find this site after being told I have active Hep C now. Maybe I can find a support group to help me deal with it. Dr. Perillo is one of my doctors.
Dorothy
Baton Rouge, LA
USA
-
12/27/2002 10:03:04 AM
Linda Hopkins ? I hadn't heard of her before visiting this web site. Having been a presenter of blues (and related rhythms) radio program for 14 years I'm gonna' hunt down some material by Linda Hopkins for my audience. All the best for 2003
Glenn Nelson
Melbourne
Australia
-
12/23/2002 5:08:20 PM
I had the immense pleasure of hearing Ms. Linda Hopkins perform at Ms. Dahle Scott-McDuff's monthly Pavior's Night @ Miceli's in Hollywood on 11-25-02. Thank you Linda for sharing your special talents! If anyone would like to see a photo please email me direcly.
Joi
Joi Dickerson
Los Angeles, CA
USA
-
12/16/2002 4:45:22 PM
Hi Yall I am Glen , I have had hep since 72. I was diagnosed with non A non B . I thought that I was over it when 30 years later I found I had it again this time in the hcv form . I have been on peg intron combo for 9 mos now and have been blessed to be clear after only 9 weeks. If I can help out this wonderful website let me know . Happy to see you doing somthing for us :) . Glen (GAZZER)
Glen Bersch
M eitairie, La
USA
-
12/14/2002 10:37:34 PM
I havebeen co-infected since formal hiv diagnosis in 1989. I feel quite sure I was infected many years before. I was elated to hear something was/ has been done to bring public awareness/assistance locally to this silent epidemic. i`m not able to domuch either physically & especially financially, but I would be happy to assist any way I can, Thanks, chuck west
charles(chuck) west
new orleans, la
USA
-
11/20/2002 9:26:57 AM
The idea of music with healing is also my cup of tea.Please for nexts years siren to wail Hepatitis C Awareness i would love to be apart of the music with a message.
Gregory Dawson
Crosswinds Band
Gregory Dawson
New Orleans, La
USA
-
11/20/2002 8:01:20 AM
I think it's great what you all are doing . we need to get a cure soon or I hope so . we need to get the word out . I have hep. c myself and hope a cure comes soon!
milton gautreaux
new orleans, la
USA
-
11/19/2002 4:07:05 PM
Dear friends, Thank you for your work. I've been diagnosed with Hep C for the last six years. I am a non-responder. I believe this fight needs a "true" spokesperson for the disease, not another P.Anderson or N.Judd who will downplay the seriouness of the situation.We need ZZTop,Phil Lesh,and Freddy Fender to speak to their millions of followers about the true dangers of HepC. God Bless, Ted Robinson
Theodore B. Robinson
Weaverville, NC
USA
-
11/17/2002 5:31:19 PM
Enjoyed the site and it is good to see more information on Hep C. I wish for a cure and hope for everyone. LaDonna
LaDonna Allard
Fort Yates, ND
USA
-
11/9/2002 9:59:57 AM
Charlene B. Durham
New York, NY
United States
-
9/15/2002 8:48:02 PM
Would like to meet others with HCV, for
support and friendship. I am a single
WSM 41 yo, very active.
Walter S. Smith
New Orleans, La
USA
-
8/28/2002 3:44:25 PM
Timothea and Dr. Perillo,
Thanks for your efforts increasing awareness of HCV. I was diagnosed a year ago and only recently discovered "Siren to Wail". It is a tremendous resource I will share with others. Thank you.
Liz
New Orleans, LA
USA
-
7/18/2002 2:15:06 PM
thank you for all of your work, we do apreciate it very much. Alot of us are becoming active and might need some advice.
brad scalf
phoenix, az
USA
-
7/10/2002 4:16:48 PM
People healed of AIDS,MS,Cancer,Parkinson's Disease, Hepatitis C at:
Baltimore Christian Faith Center
10308 Liberty Road
Randallstown, Md 21133
(410) 655-3777
dave
USA
-
7/5/2002 4:14:38 PM
Lee F. Dorsey
Ontario, ca
USA
-
5/31/2002 6:41:27 PM
i have chronic active hep c. cirrohsis has just started. also just found out i have sarcoidosis i pray for a transplant. i also suffer from severe ruq pain and abdominal pain
teresa morancie
bangor, me
USA
-
5/24/2002 6:29:56 AM
People healed of Hepatitis C at:
Baltimore Christian Faith Center
10308 Liberty Road
Randallstown, Md 21133
(410) 655-3777
dave
USA
-
5/21/2002 7:51:22 AM
PLease continue to help fight this virus. currently on 5th. month of 12month peg-intron combo
Cathey S
Mandeville, La
USA
-
5/17/2002 2:00:16 PM
Nice hepsite! The idea of music with healing is my cup of tea & even though our music types may be different, the idea is the same.
Health Hugs!
Karen
Karen
Tyler, Tx
USA
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5/8/2002 8:34:55 PM
Had a wonderful time Friday night & bowling on Sunday. Thanks for all the work that you do in HCV education. Please put me on the mailing list
Elizabeth "Bizza" Britton
Baton Rouge, LA
USA
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4/8/2002 11:14:44 AM
Elizabeth "Bizza" Britton
Bat
USA
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4/8/2002 11:11:05 AM
THANKS TIMOTHEA FOR TAKING THE HUGE STEPS THAT YOU ARE TAKING TO MAKE HEP C THE MAJOR HEALTH PROBLEM ISSUE THAT IT IS.
Charette Thomas
New Orleans, LA
USA
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4/8/2002 10:15:23 AM
Very Informative!
Gsle
Bethune Beach, FL
USA
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1/26/2002 11:28:53 AM
Jodie
Metairie, LA
USA
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1/12/2002 9:20:44 AM
Timothea: Thanks for your help in our Hepatitis C benefit concert on Jan. 6th. at the Tractor in Seattle. I know that Ane and everyone greatly appreciated it and it was a pleasure playing with you. I hope that we can play together again in the future. Take care and keep on getting the information out about hep C. We've lost too many already and need to get everyone possible aware of this disease.
John Hodgkin
Seattle, WA
USA
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1/9/2002 1:04:23 PM
http://www.gkmedical.com/index.shtml has good information relating to Liver Health.
Tim S.
orlando, FL
USA
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12/26/2001 2:22:11 PM
Timothea, thank you for your dedication to Hepatitis C. The benefit was rocking and I can't wait to see what you are going to whip up for next year. To all those hesitant about treatment - Don't wait, it can change your life. I heard so many negative things about the side effects, but I am 4 weeks in and have had almost none. A positive attitude is a must. Good luck and love to all.
Robin
New Orleans, LA
USA
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12/10/2001 4:44:40 PM
I had a great time at the benefit and
I can't wait for next year.
I want to thank Thimothea for her tireless
efforts on the benefit and all the work
she has done for the orgainization.
Hope springs eternally in her human spirit.
catman......ISYA
Chet catman Travirca
Gautier, ms
USA
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12/6/2001 2:52:38 PM
how do we get rid of this disease without using interferon?...to good health! Kenneth
Kenneth Harper
Vacaville, CA
USA
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9/27/2001 11:18:00 PM
Your campaign to raise awareness of Hep. C is working. Thanks. je
Jerry
Metiaire, LA
USA
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9/7/2001 4:14:00 PM
I don't think I've ever felt compelled to sign a guest book before. But it has been a pleasure being your guest. This damned condition has been a fight to acknowledge. I too am a writer and until my marriage (one year old, my HepC is a decade on) I felt no complusion to address it. Alone, it stayed with me, and being a sucker for punishment, accepted it as such. But with a loving man now by my side, I am forced to address it. Thankyou for your web site, thankyou for allowing me to be your guest, Yours sincerely, Helenka
Helenka
London
United Kingdom
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9/2/2001 6:59:00 AM
Thank you for giving me information that not even the doctor could. I was diagnosed last week and not one question was answered for me. I was told that there was nothing else he could do for me now... I'm very scared... thank you for the information that I was looking for and the knowledge I can use to fight this... I do appreciate it and God bless!
Debbie
Pa
USA
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4/17/2001 11:19:00 PM
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Siren To Wail,
Inc.
is dedicated
to raising public awareness, education and prevention of
the Hepatitis C Virus
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